My practice is in Chapel Hill, North Carolina, five minutes from I-40. The office is designed around patients’ comfort and convenience. Parking is right outside the door. Appointments are on time, and are unhurried: I allocate up to an hour for each follow-up appointment (and well over two hours for a first appointment). Phone calls are not delegated to office staff: I answer all calls myself.
My practice is now devoted solely to Ehlers Danlos Syndrome (EDS), and to conditions that resemble it. Note that I do not accept any insurance payments. This means patients themselves pay for my services, and I supply them with detailed receipts, so that they themselves can seek reimbursement from their insurers. Medicare and Medicaid do not reimburse patients for my services, but some other insurers do.
I regret that because of big recent increases in the number of people requesting a consultation, I will not be able to schedule new patients until after January 2018.
However, there are articles on this website for family doctors and pediatricians (“Primary Care Practitioners”), that should enable them to both diagnose, and treat, most patients with EDS and related conditions. So, I suggest that you print these articles, and see if your local doctor will read them and try to use them to help you. Click on the “Articles” menu. The two articles for primary care doctors are “Joint Hypermobility Diagnosis for Non-Specialists,” and “Medical Care of Patients with a Hypermobility Disorder.”
These two articles enable doctors with no prior knowledge of EDS and related conditions, to make a provisional diagnosis and start effective treatment, before the patient has seen a specialist. For many such patients, their family doctor can manage their care very well, and indeed better than a specialist, since they are close by and very much more available. There are other articles, for doctors and for patients. The titles should tell you which ones might be helpful for your individual issues.
On January 1, 2018, this column will contain details of how to make an appointment as a new patient. Only after that date will I set up appointments and a waiting list, so please wait until then to contact me.
Alan Spanos, MD, MA