I regret I will not be able to see new patients before October 2023. Nor will I be establishing waiting lists for new appointments. After October 1st, this page will give details of new appointment procedures. So, if you’re seeking a new appointment, check this page as soon as possible on October 1st.
I will be writing several new articles for this website between now and October. They will aim to give people with EDS information to pass to their doctors, to improve their medical care.
But you can’t get treatment for an Ehlers Danlos Syndrome unless you have a diagnosis, and hardly any doctors are now prepared to make that diagnosis. If this is your predicament, you could try a new approach. You can email me to obtain a protocol for how you yourself can gather the information needed to make an EDS diagnosis. You can then take your findings to your primary care doctor, or nurse practitioner. You can ask them to check what you’ve found, and see if you “meet criteria for an EDS diagnosis.” This saves your practitioner a lot of time, and provides the added reassurance that they, and you, are using diagnostic criteria that are time-tested and endorsed by EDS specialists. My hope is that this procedure will persuade some of them to make a diagnosis that will lead to better medical care for you.
If you want to try this, then send me a short email (not over 10 lines) explaining why you want to be checked for possible EDS. I’ll send you the diagnostic protocol, with instructions both for you, and for your doctor, on how to use it.
Alan Spanos, MD, MA